Tagged: Dana–Farber Cancer Institute

25 Days to Go

March 21, 2013

Good Morning,

Today is 25 days before the Boston Marathon, the day I run 25 miles to help cure cancer.  Don’t worry, you won’t be the first person to ask me if I realize that a marathon is 26.2 miles.  To explain, we need to go back five years to my first marathon…

I stood motionless, as I watched runners continue to the 113th Boston Marathon finish line. It had taken me 16 months to reach this place on the course.  The year before, just two weeks before my first Boston Marathon, I found myself in the hospital with a server case of mononucleosis, destine to watch my first marathon from bed.

Yet, there I was, in pain, defeated and unable to gather the strength to finish.   When I looked up, I noticed the iconic red and orange Citgo triangle. To my right, Fenway Park in the distance. I realized I was at mile 25 of the marathon. With a little over a mile left, and after 2 years of hard work, I reached deep down for a way to finish. I commanded my body to start running, but after a couple of steps, I stopped. I tried again and again, with no success. I can’t remember a moment in my life that I felt more defeated, more hopeless. Minutes felt like hours. I desperately searched for the littlest bit of hope to give me the confidence to continue. I took my hands off my knees, lifted my head and lunged forward with a roar of pain and belief. This time I didn’t stop until the finish line.  A life lesson that wouldn’t be challenged until…

Two years later I stood on that same spot. It happens to be the location where some of the children from the Jimmy Fund Client cheer on the Dana-Farber Marathon Team. This time I was hugging my Dana-Farber marathon partner, Brendan. At the time, he was a 10 year old patient being treated for Acute Lymphoblastic Leukemia at the Jimmy Fund Clinic. Over the months before the marathon, Brendan and his family brought me into their world of a child with Leukemia. Brendan would walk me through the different treatments and protocols he would follow. He would explain to me about the different drugs that he would have to take. He showed me the tubes, the scars and the other pains of cancer that are left behind the curtain for people like me to never see.

I can’t think of another spot on Earth that has taught me more about what a human will do to endure.  Since then, my marathons end at Mile 25 (with a 1.2 mile victory lap).   I have seen the success of Dana-Farber through Brendan.  Today when Brendan and I talk, it’s about school, video games, and girls (I wasn’t ready for that one!).  Through events with the Dana-Farber Leadership Council I’ve had the privilege to speak with the doctors and scientists working on the next steps to cure cancer.  I can tell you, our donations are well spent.

Like many of you, I am recently reminded that the cancer marathon is not over.  Since my last marathon, an extended family member was diagnosed with brain cancer and is fighting for his life.  A close family friend was diagnosed with breast cancer that has metastasized to the lymph nodes.  And another friend continues her multi-year battle.

This morning, I ask you to help everyone to reach their Mile 25 by donating to Dana-Farber.  The Dana-Farber Marathon Challenge directs 100 percent of funds raised to Dana-Farber Cancer Institute’s Claudia Adams Barr Program in Innovative Basic Cancer Research.

I would like to take this opportunity to remind you of your company’s generous donation matching program.  If you are unsure if your donation is eligible for a match by your employer, please inquire with your Human Resources department.

I sincerely thank you.

– Patrick


To donate go to http://www.runDFMC.org/2013/patricko


To learn more go to http://www.rundfmc.org/faf/home/ccp.asp?ievent=1039390&ccp=116364

To see Barr Program Impact go to Impact


Feeling Good

Hi Patrick,
Hope your feeling better. I feel pretty good despite being back on Chemo again. I had no appetite for the first few days but now the steroids seem to be kicking in again!!YAY!! My mom was starting to get worried I wasn’t going to eat anymore and need to be back on my feeding tube, but so far I’m ok and just using it for all my meds again. Unfortunately my jaw pain is back.
I went to school Friday for an hour to see the chinese acrobats that came to perform at my school. They were really awesome and it was nice to see my friends again. I will be back in school tomorrow, but not on Tuesday. I have 3 different appointments on
Tuesday, so I will stay home that day.
Monday afternoon, Make A Wish is coming by to meet me and talk about my Make A Wish. I had been wanting to do a Mediterranean cruise, but after looking through some cruise brochures, I think I might want to do a Caribbean cruise instead. ( I REALLY want to go on The Oasis of the Seas, ship!!! They even have a zipline ON the ship!!!! It looks amazing!!!

Yesterday we went to the Franklin Park Zoo to have a private tour of the Zoo and to go and feed the Giraffes!! Giraffes are my favorite animals and have been since I was a baby. It was really awesome to be up close with them. I got to feed Beau, the male giraffe since Jana is more nervous around people. Beau is 18 feet tall. He was so nice and friendly.  After we saw the giraffes our guide took us to see the lion and the tigers. As soon as we got there, the lion stood up and started to roar. We didn’t think much about it until we got to the tigers, and one of them was completely fascinated by me. Every time my mom moved my wheelchair, the tiger followed us. The man from the zoo said he had never seen them so interested in someone. When we finally went to walk away, The tiger followed us as far as he could go. It made the man nervous and he said he was going to tell their caretakers. I think they saw me as easy prey and were sizing me up as a snack!!
I just went to see the movie HOP, with my mom and dad this morning. It was a lot of fun!

Hope your muscle pull is feeling better and you are able to start running again soon!! I’ll update again after I meet with Make A Wish! Have a good weekend.

A long week

Hi Patrick,

I’m glad you were able to go to clinic with me last Thursday. Too bad it ended up being so quick with no Chemo.

I’m so glad that my biopsy seems to be negative, but I still need to get the final results hopefully Monday, and then we still need to have the Lumbar Puncture so they can check for CNS involvement. It was a really scary 24 hours!!

I hope you aren’t too sore after your run today. I can’t believe the marathon is a little over a month away. The family who my mom used to babysit for will also be at the Pasta Party, since there dad run’s for Dana-Farber every year.

Hope you have a good week. I’ll let you know what happens this week in clinic. Keep your fingers crossed that I can finally get my chemo!!!

Talk soon